We were actually able to ALL go to church and ALL sit in church. I could put Calvin down and take a shower without my blood pressure shooting through the roof and shampooing my hair in negative two seconds, flat. We took Calvin to a Christmas party at my parents and I could actually put him down and get something to eat (and he wasn't crying or choking!) and visit with people.
Calvin had a great time with my brother, Zach. Look at his giggles!
Dear friends of ours (the Beekes) came over and for the first time were able to see Calvin in a non-screaming state. I think we may have even had a conversation. It was all so calm it was surreal after a year of incredible instensity.
It almost seemed too good to be true. And it was, sort-of. The day after the Beeke clan headed for Canada and every last Chrimstmas bow and wrapper were put away, Calvin began vomiting. Precisely what his surgery was supposed to prevent. We were quite crushed.
For the past two weeks we've been in the excellent hands of the medical team at Spectrum and are working to keep Calvin hydrated and in a non-retching state. We haven't quite acheived the latter yet. So in many respects we feel like we have gone backwards. He has his reflux back (although the surgery seems to be preventing some of it still) and in addition we are not able to keep fluids in him very well. He's on the feeding tube the whole night and can only take 1-3 ounces each hour. And then he still vomits sometimes.
We are so thankful for the small glimpse we had of Calvin when he was comfortable. He's a delight! We are praying we can get him to that state again. It's been hard for me to understand this. In a way if feels like God gave us such relief and then took it back again. Pray for us that we would continue to trust Him and not despair of His mercy.